TY - JOUR
T1 - The international collaboration for autism registry epidemiology (iCARE)
T2 - Multinational registry-based investigations of autism risk factors and trends
AU - Schendel, Diana E.
AU - Bresnahan, Michaeline
AU - Carter, Kim W.
AU - Francis, Richard W.
AU - Gissler, Mika
AU - Grønborg, Therese K.
AU - Gross, Raz
AU - Gunnes, Nina
AU - Hornig, Mady
AU - Hultman, Christina M.
AU - Langridge, Amanda
AU - Lauritsen, Marlene B.
AU - Leonard, Helen
AU - Parner, Erik T.
AU - Reichenberg, Abraham
AU - Sandin, Sven
AU - Sourander, Andre
AU - Stoltenberg, Camilla
AU - Suominen, Auli
AU - Surén, Pål
AU - Susser, Ezra
N1 - Funding Information:
Acknowledgments We wish to acknowledge iCARE funding support from Autism Speaks grant numbers: 6230, 6246–6249, 6251, 6295. We also gratefully acknowledge the contributions to iCARE development and implementation of the Centers for Disease Control and Prevention, Manuel Posada MD, PhD, Anastasia Nyman Iliadou, PhD, JukkaHuttunen, PhD and TanjaSarlin, MSc.
PY - 2013/11
Y1 - 2013/11
N2 - The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
AB - The International Collaboration for Autism Registry Epidemiology (iCARE) is the first multinational research consortium (Australia, Denmark, Finland, Israel, Norway, Sweden, USA) to promote research in autism geographical and temporal heterogeneity, phenotype, family and life course patterns, and etiology. iCARE devised solutions to challenges in multinational collaboration concerning data access security, confidentiality and management. Data are obtained by integrating existing national or state-wide, population-based, individual-level data systems and undergo rigorous harmonization and quality control processes. Analyses are performed using database federation via a computational infrastructure with a secure, web-based, interface. iCARE provides a unique, unprecedented resource in autism research that will significantly enhance the ability to detect environmental and genetic contributions to the causes and life course of autism.
KW - Autism
KW - Epidemiology
KW - Multinational
KW - Risk factors
KW - Study methods
UR - https://www.scopus.com/pages/publications/84886773249
U2 - 10.1007/s10803-013-1815-x
DO - 10.1007/s10803-013-1815-x
M3 - Article
C2 - 23563868
AN - SCOPUS:84886773249
SN - 0162-3257
VL - 43
SP - 2650
EP - 2663
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 11
ER -