The Importance of Collaboration in Advancing Understanding of Rare Disorders: US/EU Joint Initiative on Silver-Russell Syndrome

Keyphrases

• Rare Disorders 100%
• Silver-Russell Syndrome 100%
• Joint Initiative 100%
• Patient Support 66%
• Patient Demographics 33%
• Clinical Care 33%
• Effective Method 33%
• Healthcare Research 33%
• Group by 33%
• Clinical Practitioners 33%
• Public Funding 33%
• Medical Specialists 33%
• Research Professionals 33%
• Center of Excellence 33%
• Funding Agencies 33%
• Funding Sources 33%
• Internet Use 33%
• Can Effect 33%
• Support Platform 33%
• Rare Disease Research 33%
• Rare Disease Patients 33%
• Government Initiatives 33%
• Connecting Family 33%
• Parent Leadership 33%

Medicine and Dentistry

• Orphan Disorder 100%
• Silver-Russell Syndrome 100%
• Rare Disease 66%
• Patient Population 33%
• Population Research 33%