Seizure documentation in people living with epilepsy

Jonathan Goldstein, Churl Su Kwon, Michael Harmon, Jeffrey Buchhalter, Alison Kukla, Susan McCallum, Lisa Raman, Susan T. Herman, Brandy Fureman, Nathalie Jette

Research output: Contribution to journalReview articlepeer-review

12 Scopus citations


Seizure documentation is an essential component of epilepsy management. Not all persons with epilepsy choose to document their seizures, but many view the practice as essential to managing their disease. While seizure documentation is a valuable aspect of patient care, clinicians and patients must remain aware that seizure underreport and overreport commonly occur due to lack of seizure awareness. Additionally, in rare cases, persons with epilepsy may intentionally conceal their seizures from clinicians. The continued development of electronic seizure diaries and epilepsy self-management software provides patients with new and expanding options for seizure documentation and disease management. In order for these tools to be utilized most effectively, patient input must be central to their development. Given the limitations of seizure documentation, the development of accurate, non-invasive seizure detection devices is crucial for accurate seizure monitoring.

Original languageEnglish
Article number108383
JournalEpilepsy and Behavior
StatePublished - Dec 2021


  • Electronic diary
  • Patient-reported outcomes
  • Seizure diary


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