TY - JOUR
T1 - Recruitment and retention in a longitudinal palliative care study
AU - Sherman, Deborah Witt
AU - McSherry, Christina Beyers
AU - Parkas, Valerie
AU - Ye, Xiang Y.
AU - Calabrese, Miriam
AU - Gatto, Maria
N1 - Funding Information:
This study was funded by the National Cancer Institute.
PY - 2005/8
Y1 - 2005/8
N2 - A longitudinal feasibility study regarding quality of life and interventions for patients with advanced cancer or AIDS and their family caregivers was conducted to determine issues related to their recruitment and retention and to obtain pilot data relevant to the development of a larger study. At the completion of the study, a focus group consisting of the members of the palliative care research team was convened to identify barriers to and facilitators of the research process based on their research experience. The purpose of this article is to (1) describe recruitment, mortality rates, attrition rates, and compliance with data collection of patients and family caregivers experiencing an advanced illness and to (2) examine the researchers' perspectives regarding barriers to and facilitators of the research process that relate to patients and family caregivers, institutions, the data collection process, and their personal experiences. Implications for palliative care research are discussed.
AB - A longitudinal feasibility study regarding quality of life and interventions for patients with advanced cancer or AIDS and their family caregivers was conducted to determine issues related to their recruitment and retention and to obtain pilot data relevant to the development of a larger study. At the completion of the study, a focus group consisting of the members of the palliative care research team was convened to identify barriers to and facilitators of the research process based on their research experience. The purpose of this article is to (1) describe recruitment, mortality rates, attrition rates, and compliance with data collection of patients and family caregivers experiencing an advanced illness and to (2) examine the researchers' perspectives regarding barriers to and facilitators of the research process that relate to patients and family caregivers, institutions, the data collection process, and their personal experiences. Implications for palliative care research are discussed.
UR - http://www.scopus.com/inward/record.url?scp=22244467691&partnerID=8YFLogxK
U2 - 10.1016/j.apnr.2005.04.003
DO - 10.1016/j.apnr.2005.04.003
M3 - Article
C2 - 16106335
AN - SCOPUS:22244467691
SN - 0897-1897
VL - 18
SP - 167
EP - 177
JO - Applied Nursing Research
JF - Applied Nursing Research
IS - 3
ER -