Quality of life in individuals with erythematotelangiectatic and papulopustular rosacea: Findings from a web-based survey

Joshua A. Zeichner, Lawrence F. Eichenfield, Steven R. Feldman, J. Scott Kasteler, Ilia L. Ferrusi

Research output: Contribution to journalArticlepeer-review

23 Scopus citations

Abstract

OBJECTIVE: The objective of the study was to evaluate the impact of rosacea on self-perception, emotional, social, and overall well-being and quality of life in individuals with erythematotelangiectatic rosacea (ETR) and papulopustular rosacea (PPR). DESIGN: We distributed a cross-sectional email invitation for participants in the United States to fill out a web-based survey. PARTICIPANTS: We included adults who reported having previously received a diagnosis of erythematotelangiectatic rosacea or papulopustular rosacea. MEASUREMENTS: Questionnaires measured the psychosocial aspects of rosacea, including the Satisfaction With Appearance Scale and modified Satisfaction With Appearance Scale questionnaires, Impact Assessment for Rosacea Facial Redness, Rosacea-Specific Quality-of-Life questionnaire, and RAND 36-Item Short Form Health Survey. The Impact Assessment for Rosacea Facial Bumps or Pimples was administered to the papulopustular rosacea cohort. RESULTS: Six hundred participants enrolled and completed the survey, with most rating their rosacea as mild or moderate (ETR: 95.6%; PPR: 93.7%). In the erythematotelangiectatic rosacea and papulopustular rosacea cohorts, respectively, 45 and 53 percent disagreed/ strongly disagreed that they were satisfied with their appearance due to rosacea; 42 and 27 percent agreed/ strongly agreed that they "worry how people will react when they see my rosacea"; and 43 and 59 percent agreed/ strongly agreed that they feel their rosacea is unattractive to others. Rosacea-Specific Quality-of-Life total and domain scores indicated negative impact of rosacea for both cohorts. Both cohorts reported worse 36-item Short Form Health Survey overall and domain scores than population norms in the United States. CONCLUSION: Rosacea had wide-ranging, negative effects on selfperceptions and emotional, social, and overall well-being as well as rosacea-specific quality of life. Overall, both erythematotelangiectatic rosacea and papulopustular rosacea cohorts reported a substantial negative impact of rosacea on quality of life on a range of instruments.

Original languageEnglish
Pages (from-to)47-52
Number of pages6
JournalJournal of Clinical and Aesthetic Dermatology
Volume11
Issue number2
StatePublished - Feb 2018

Keywords

  • Erythematotelangiectatic rosacea
  • Papulopustular rosacea
  • Psychosocial impact
  • Quality of life
  • Rosacea

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