Abstract
Although family satisfaction is recognized as a critical indicator of quality care for persons with serious illness, Spanish-language measures are limited. The study aims were to develop a Spanish translation of the short-form Family Satisfaction With End-of-Life Care (FAMCARE), investigate its psychometric properties in Hispanic caregivers to patients with Alzheimer’s disease and related dementias (ADRD; N = 317; 209 interviewed in Spanish), and add parameters to an existing item bank. Based on factor analyses, the measure was found to be essentially unidimensional. Reliabilities from a graded item response theory model were high; the average estimate was 0.93 for the total and Spanish-language subsample. Discrimination parameters were high, and the model fit adequate. This is the first study to examine the performance of the short-form FAMCARE measure among Hispanics and caregivers to patients with ADRD. The short-form measure can be recommended for Hispanics and caregivers to patients with ADRD.
| Original language | English |
|---|---|
| Pages (from-to) | 557-589 |
| Number of pages | 33 |
| Journal | Journal of Family Nursing |
| Volume | 25 |
| Issue number | 4 |
| DOIs | |
| State | Published - 1 Nov 2019 |
Keywords
- Alzheimer’s disease
- FAMCARE
- Spanish language
- caregivers
- confirmatory factor analyses
- item bank
- item response theory
- palliative care