Psychometric Properties of a Spanish-Language Version of a Short-Form FAMCARE: Applications to Caregivers of Patients With Alzheimer’s Disease and Related Dementias

Jeanne A. Teresi, Katja Ocepek-Welikson, Mildred Ramirez, Katherine A. Ornstein, Suzanne Bakken, Albert Siu, José A. Luchsinger

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

Although family satisfaction is recognized as a critical indicator of quality care for persons with serious illness, Spanish-language measures are limited. The study aims were to develop a Spanish translation of the short-form Family Satisfaction With End-of-Life Care (FAMCARE), investigate its psychometric properties in Hispanic caregivers to patients with Alzheimer’s disease and related dementias (ADRD; N = 317; 209 interviewed in Spanish), and add parameters to an existing item bank. Based on factor analyses, the measure was found to be essentially unidimensional. Reliabilities from a graded item response theory model were high; the average estimate was 0.93 for the total and Spanish-language subsample. Discrimination parameters were high, and the model fit adequate. This is the first study to examine the performance of the short-form FAMCARE measure among Hispanics and caregivers to patients with ADRD. The short-form measure can be recommended for Hispanics and caregivers to patients with ADRD.

Original languageEnglish
Pages (from-to)557-589
Number of pages33
JournalJournal of Family Nursing
Volume25
Issue number4
DOIs
StatePublished - 1 Nov 2019

Keywords

  • Alzheimer’s disease
  • FAMCARE
  • Spanish language
  • caregivers
  • confirmatory factor analyses
  • item bank
  • item response theory
  • palliative care

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