Presentation and Long-Term Follow-up of Refractory Celiac Disease: Comparison of Type I With Type II

  • Georgia Malamut
  • , Pauline Afchain
  • , Virginie Verkarre
  • , Thierry Lecomte
  • , Aurélien Amiot
  • , Diane Damotte
  • , Yoram Bouhnik
  • , Jean Frédéric Colombel
  • , Jean Charles Delchier
  • , Matthieu Allez
  • , Jacques Cosnes
  • , Anne Lavergne-Slove
  • , Bertrand Meresse
  • , Ludovic Trinquart
  • , Elizabeth Macintyre
  • , Isabelle Radford-Weiss
  • , Olivier Hermine
  • , Nicole Brousse
  • , Nadine Cerf-Bensussan
  • , Christophe Cellier

Research output: Contribution to journalArticlepeer-review

335 Scopus citations

Abstract

Background & Aims: Refractory celiac disease (RCD) was recently subdivided into 2 subtypes (RCD I and II) based on a normal or abnormal phenotype of intraepithelial lymphocytes (IELs), respectively. It is not clear, however, if these 2 entities differ in their presentation at diagnosis or long-term outcome. We compared the clinical and biological characteristics of RCD I and RCD II at diagnosis, the risk of developing an overt lymphoma, and the predictive factors of survival. Methods: Medical files of 14 patients with RCD I and 43 with RCD II were analyzed retrospectively. Predictive factors of overt lymphoma and survival were studied in univariate and multivariate analyses. Results: At diagnosis, malnutrition, ulcerative jejunitis, and lymphocytic gastritis were more common in patients with RCD II than RCD I (P < .05). Overt lymphomas occurred in 2 patients with RCD I and 16 with RCD II. In the univariate analysis, abnormal IEL phenotype and increased age at diagnosis of RCD were predictive factors for overt lymphoma. Abnormal IEL phenotype (P < .01), clonality (P = .01), and overt lymphoma (P = .001) predicted short survival time. Only abnormal IEL phenotype (P = .03) and overt lymphoma (P = .04) were predictive in the multivariate analysis. The 5-year survival rate was 93% in patients with RCD I and 44% with RCD II. Conclusions: RCD II has a much more severe presentation and prognosis than patients with RCD I; <44% of patients with RCD II survive 5 years after diagnosis. Abnormal IEL phenotype is a predictive factor but not a necessary condition for the development of overt lymphoma.

Original languageEnglish
Pages (from-to)81-90
Number of pages10
JournalGastroenterology
Volume136
Issue number1
DOIs
StatePublished - Jan 2009
Externally publishedYes

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