Pediatric and Congenital Cardiovascular Disease Research Challenges and Opportunities: JACC Review Topic of the Week

Alexander R. Opotowsky, Kiona Y. Allen, Emily M. Bucholz, Kristin M. Burns, Pedro del Nido, Kathleen N. Fenton, Bruce D. Gelb, James N. Kirkpatrick, Shelby Kutty, Linda M. Lambert, Keila N. Lopez, Laura J. Olivieri, Nathan M. Pajor, Sara K. Pasquali, Christopher J. Petit, Erica Sood, John M. VanBuren, Gail D. Pearson, Shelley D. Miyamoto

Research output: Contribution to journalReview articlepeer-review

1 Scopus citations

Abstract

The National Heart, Lung, and Blood Institute convened a workshop in August 2021 to identify opportunities in pediatric and congenital cardiovascular research that would improve outcomes for individuals with congenital heart disease across the lifespan. A subsidiary goal was to provide feedback on and visions for the Pediatric Heart Network. This paper summarizes several key research opportunities identified in the areas of: data quality, access, and sharing; aligning cardiovascular research with patient priorities (eg, neurodevelopmental and psychological impacts); integrating research within clinical care and supporting implementation into practice; leveraging creative study designs; and proactively enriching diversity of investigators, participants, and perspectives throughout the research process.

Original languageEnglish
Pages (from-to)2239-2250
Number of pages12
JournalJournal of the American College of Cardiology
Volume80
Issue number23
DOIs
StatePublished - 6 Dec 2022

Keywords

  • collaborative science
  • congenital heart disease
  • lifespan
  • outcomes
  • research

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