@article{36aa0befba1e46dbba1fac597919539a,
title = "Partnering With Participant Advisors on the Parkinson's Progression Markers Initiative",
abstract = "Partnership with participants on study protocols and conduct informs study design, provides novel insights, and speeds enrollment and outcomes. The Parkinson's Progression Markers Initiative (PPMI) solicits volunteer inputs through a Community Advisory Board, in-person events, and communication with site teams and centralized study services. Participant inputs have shaped PPMI procedures and protocols including (i) the myPPMI online platform, (ii) return of research information, (iii) lumbar puncture education, (iv) engaging representative populations, and (v) travel procedures. The study's methods for engaging participants and its modifications arising from those conversations provide a model for those seeking to design accessible and impactful studies. ANN NEUROL 2026.",
author = "\{the Parkinson's Progression Markers Initiative\} and \{McGuire Kuhl\}, Maggie and Christina Destro and Dobkin, \{Roseanne D.\} and Tropea, \{Thomas F.\} and Kathryn Brodkin and Emily Flagg and Lemon, \{Lynell P.\} and Brittney Henry and McMahon, \{Bridget A.\} and Stanley, \{Craig E.\} and Auldyn Matthews-McGee and Heathers, \{Laura E.A.\} and Mandy Miller and Haley Myers and Tatiana Foroud and Courtney Pico and Caitlin Kelliher and Kopil, \{Catherine M.\} and Allen Dance and Brian Duggan and Goldstein, \{Frederic S.\} and Robinson, \{Barbara S.\} and Jay Robinson and Marty Acevedo and Martha Clark and Carey Hidaka and John Moran and Paul Lugo and Sara Sugihara and Paulson, \{Robert D.\} and Alongi, \{Philip T.\} and Linda Comerci and Kevin Kwok and Hyam Kramer and Kenneth Marek and Kenneth Marek and Tanya Simuni and Andrew Siderowf and Caroline Tanner and Tropea, \{Thomas F.\} and Tatiana Foroud and Lana Chahine and Brit Mollenhauer and Kalpana Merchant and Douglas Galasko and Christopher Coffey and Kathleen Poston and Roseanne Dobkin and Susan Bressman and Katherine Leaver",
note = "Publisher Copyright: {\textcopyright} 2026 American Neurological Association.",
year = "2026",
doi = "10.1002/ana.78220",
language = "English",
journal = "Annals of Neurology",
issn = "0364-5134",
publisher = "John Wiley \& Sons Inc.",
}