TY - JOUR
T1 - Mail and Telephone Outreach from Electronic Health Records for Research Participation on Cognitive Health and Aging
AU - Pun, K.
AU - Zhu, Carolyn W.
AU - Kinsella, M. T.
AU - Sewell, M.
AU - Grossman, H.
AU - Neugroschl, J.
AU - Li, C.
AU - Ardolino, A.
AU - Velasco, N.
AU - Sano, M.
N1 - Funding Information:
Funding for this initiative was provided by the Alzheimer’s Disease Research Center (ADRC) at the Icahn School of Medicine at Mount Sinai (P50AG005138), the Alzheimer’s Therapeutic Research Institute (R01AG047992), and the National Center for Advancing Translation Sciences (UL1TR001433). Drs. Sano, Grossman, and Zhu also are supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. The sponsors had no role in the design and conduct of the study; in the collection, analysis, and interpretation of data; in the preparation of the manuscript; or in the review or approval of the manuscript.
Funding Information:
Funding for this initiative was provided by the Alzheimer?s Disease Research Center (ADRC) at the Icahn School of Medicine at Mount Sinai (P50AG005138), the Alzheimer?s Therapeutic Research Institute (R01AG047992), and the National Center for Advancing Translation Sciences (UL1TR001433). Drs. Sano, Grossman, and Zhu also are supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. The sponsors had no role in the design and conduct of the study; in the collection, analysis, and interpretation of data; in the preparation of the manuscript; or in the review or approval of the manuscript.
Publisher Copyright:
© 2021, Serdi and Springer Nature Switzerland AG.
PY - 2021/7
Y1 - 2021/7
N2 - Objectives: This report describes the efficacy and utility of recruiting older individuals by mail to participate in research on cognitive health and aging using Electronic Health Records (EHR). Methods: Individuals age 65 or older identified by EHR in the Mount Sinai Health System as likely to have Mild Cognitive Impairment (MCI) were sent a general recruitment letter (N=12,951). A comparison group of individuals with comparable age and matched for gender also received the letter (N=3,001). Results: Of the 15,952 individuals who received the mailing, 953 (6.0%) responded. 215 (1.3%) declined further contact. Overall rate of expression of interest was 4.6%. Of the 738 individuals who responded positively to further contact, 321 indicated preference for further contact by telephone. Follow-up of these individuals yielded 30 enrollments (0.2% of 15,952). No differences in response rate were noted between MCI and comparison groups, but the comparison group yielded higher enrollment. 6 individuals who were not the intended recipients of mailing but nevertheless contacted our study were also enrolled. Conclusions: Mailings to individuals identified through a trusted source, such as a medical center from which they have received clinical care, may be a viable means of reaching individuals within this age group as this effort yielded a low rejection rate. However, EHR information did not enhance study enrollment. Implications for improving recruitment are discussed.
AB - Objectives: This report describes the efficacy and utility of recruiting older individuals by mail to participate in research on cognitive health and aging using Electronic Health Records (EHR). Methods: Individuals age 65 or older identified by EHR in the Mount Sinai Health System as likely to have Mild Cognitive Impairment (MCI) were sent a general recruitment letter (N=12,951). A comparison group of individuals with comparable age and matched for gender also received the letter (N=3,001). Results: Of the 15,952 individuals who received the mailing, 953 (6.0%) responded. 215 (1.3%) declined further contact. Overall rate of expression of interest was 4.6%. Of the 738 individuals who responded positively to further contact, 321 indicated preference for further contact by telephone. Follow-up of these individuals yielded 30 enrollments (0.2% of 15,952). No differences in response rate were noted between MCI and comparison groups, but the comparison group yielded higher enrollment. 6 individuals who were not the intended recipients of mailing but nevertheless contacted our study were also enrolled. Conclusions: Mailings to individuals identified through a trusted source, such as a medical center from which they have received clinical care, may be a viable means of reaching individuals within this age group as this effort yielded a low rejection rate. However, EHR information did not enhance study enrollment. Implications for improving recruitment are discussed.
KW - Recruitment methods
KW - cognitive health
KW - electronic health records
KW - mild cognitive impairment
UR - http://www.scopus.com/inward/record.url?scp=85104855133&partnerID=8YFLogxK
U2 - 10.14283/jpad.2021.18
DO - 10.14283/jpad.2021.18
M3 - Article
C2 - 34101786
AN - SCOPUS:85104855133
SN - 2426-0266
VL - 8
SP - 292
EP - 298
JO - The journal of prevention of Alzheimer's disease
JF - The journal of prevention of Alzheimer's disease
IS - 3
ER -