Knowledge of chronic intestinal failure among US gastroenterologists: Cause for concern and learning opportunity

Kishore R. Iyer, Marion Winkler, Nicole Zubizarreta, Marjorie Nisenholtz, Katie Lucero, Jovana Lubarda

Research output: Contribution to journalArticlepeer-review


Background: Chronic intestinal failure (CIF) is an ultrarare disease, with an estimated national prevalence of ∼25,000 cases. There is a suspicion of widespread lack of expertise in CIF care, but no formal assessment tool or data exist. We developed and validated a knowledge test in CIF and now report our preliminary results from testing CIF knowledge in a cohort of US gastroenterologists. Method: We developed a 20-question knowledge test in CIF, covering four key components of IF. After internal testing, refinement, and revision, we administered the test to a convenience sample of experts and nonexperts in IF. We then deployed the validated test to a cohort of 100 US gastroenterologists. Results: The test had a Cronbach alpha of 0.74, suggesting a reliable test, with a threshold score to discriminate experts and nonexperts of 13.4 (maximum 20) and with a sensitivity of 81.3% and specificity of 86.4%. The overall mean score of 8.2 for the 100 US gastroenterologists was at the level of nonexperts in our convenience sample. Conclusion: The preliminary results of our validated knowledge test in IF among a broad group of US gastroenterologists demonstrate lack of knowledge in IF.

Original languageEnglish
Pages (from-to)730-733
Number of pages4
JournalJournal of Parenteral and Enteral Nutrition
Issue number3
StatePublished - Mar 2022


  • adult
  • education
  • gastroenterology
  • home nutrition support
  • parenteral nutrition
  • short bowel syndrome


Dive into the research topics of 'Knowledge of chronic intestinal failure among US gastroenterologists: Cause for concern and learning opportunity'. Together they form a unique fingerprint.

Cite this