Involving Patients in the Development and Evaluation of an Educational and Training Experiential Intervention (ETEI) to Improve Muscle Invasive Bladder Cancer Treatment Decision-making and Post-operative Self-care: a Mixed Methods Approach

Nihal Mohamed, Tung Ming Leung, Qainat N. Shah, Sailaja Pisipati, Donna L. Berry, Emma K.T. Benn, Cheryl T. Lee, Simon Hall, Reza Mehrazin, John Sfakianos

Research output: Contribution to journalArticlepeer-review

2 Scopus citations

Abstract

This study aims to describe the acceptability and feasibility of an educational and training experiential intervention (ETEI) we developed to enhance muscle invasive bladder cancer (MIBC) patients with treatment decision-making and post-operative self-care. Twenty-five patients were randomized to a control group (N = 8) or ETEI group (N = 17). ETEI group participated in a nurse-led session on MIBC education. The control group received diet and nutrition education. Study questionnaires were completed at baseline and at 1-month post-intervention. Our results showed acceptable recruitment (58%) and retention rates (68%). The ETEI group reported increased knowledge (82% vs. 50%), improved decisional support (64% vs. 50%), improved communication (73% vs. 50%), and increased confidence in treatment decisions (73% vs. 50%) compared to the control group. Patients in the control group reported improved diet (50% v. 27%) as well as maintaining a healthy lifestyle (67% vs. 45%) compared to the ETEI group. Patients in the ETEI group reported a significant decrease in cancer worries and increases in self-efficacy beliefs over time compared to the control group. The ETEI was feasible, acceptable, and showed a potential for inducing desired changes in cancer worries and efficacy beliefs.

Original languageEnglish
Pages (from-to)808-818
Number of pages11
JournalJournal of Cancer Education
Volume35
Issue number4
DOIs
StatePublished - 1 Aug 2020

Keywords

  • Educational intervention
  • Health related quality of life
  • Muscle invasive bladder cancer
  • Treatment decision-making
  • Urinary diversion

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