Health Care Trajectories for Children With ADHD in France: Results From the QUEST Survey

Hervé Caci; David Cohen; Olivier Bonnot; Bernard Kabuth; Jean Phillipe Raynaud; Sabrina Paillé; Louis Vallée

doi:10.1177/1087054715618790

Health Care Trajectories for Children With ADHD in France: Results From the QUEST Survey

Hervé Caci, David Cohen, Olivier Bonnot, Bernard Kabuth, Jean Phillipe Raynaud, Sabrina Paillé, Louis Vallée

Research output: Contribution to journal › Article › peer-review

3 Scopus citations

Abstract

Objective: The objective of this study is to retrospectively describe the pathway toward ADHD diagnosis and treatment, and identify potential areas for improvement. Method: Parent-reported questionnaires were collected by a national sample of ADHD specialists. Results: In total, 473 complete questionnaires were analyzed. Initial onset of ADHD symptoms was reported at a mean age of 4.45 years. Mean age at diagnosis was 8.07 years, and half of the families had seen at least three health care professionals previously. Psychiatrists were most commonly consulted. A “combined” (89% boys) and inattentive (49% boys) profile was identified. Diagnosis was made 1 year later for the latter group. Two thirds of patients received pharmacological treatment. The delay in diagnosis was identified as the main source of concern for caregivers. Conclusion: The 4-year delay in diagnosis may represent a loss of opportunity. Training health care professionals in the core symptoms of ADHD may help reduce disparities and improve patient trajectory.

Original language	English
Pages (from-to)	52-65
Number of pages	14
Journal	Journal of Attention Disorders
Volume	24
Issue number	1
DOIs	https://doi.org/10.1177/1087054715618790
State	Published - 1 Jan 2020
Externally published	Yes

Keywords

ADHD
QUEST
children
diagnosis
health care
survey
treatment

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title = "Health Care Trajectories for Children With ADHD in France: Results From the QUEST Survey",

abstract = "Objective: The objective of this study is to retrospectively describe the pathway toward ADHD diagnosis and treatment, and identify potential areas for improvement. Method: Parent-reported questionnaires were collected by a national sample of ADHD specialists. Results: In total, 473 complete questionnaires were analyzed. Initial onset of ADHD symptoms was reported at a mean age of 4.45 years. Mean age at diagnosis was 8.07 years, and half of the families had seen at least three health care professionals previously. Psychiatrists were most commonly consulted. A “combined” (89% boys) and inattentive (49% boys) profile was identified. Diagnosis was made 1 year later for the latter group. Two thirds of patients received pharmacological treatment. The delay in diagnosis was identified as the main source of concern for caregivers. Conclusion: The 4-year delay in diagnosis may represent a loss of opportunity. Training health care professionals in the core symptoms of ADHD may help reduce disparities and improve patient trajectory.",

keywords = "ADHD, QUEST, children, diagnosis, health care, survey, treatment",

author = "Herv{\'e} Caci and David Cohen and Olivier Bonnot and Bernard Kabuth and Raynaud, {Jean Phillipe} and Sabrina Paill{\'e} and Louis Vall{\'e}e",

note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The survey was supported by Shire France AG. Xavier Benarous, MSc, MD, resident in psychiatry Hop{\^i}tal Piti{\'e}-Salp{\^e}tri{\`e}re, provided editorial assistance for this publication under the direction of the authors. Editorial assistance in formatting, proofreading, copy editing, and fact checking was provided by Raison De Sant{\'e} funded by Shire France AG. Statistical analysis was provided by Methodomics. Publisher Copyright: {\textcopyright} The Author(s) 2016.",

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doi = "10.1177/1087054715618790",

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AU - Caci, Hervé

AU - Cohen, David

AU - Bonnot, Olivier

AU - Kabuth, Bernard

AU - Raynaud, Jean Phillipe

AU - Paillé, Sabrina

AU - Vallée, Louis

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: The survey was supported by Shire France AG. Xavier Benarous, MSc, MD, resident in psychiatry Hopîtal Pitié-Salpêtrière, provided editorial assistance for this publication under the direction of the authors. Editorial assistance in formatting, proofreading, copy editing, and fact checking was provided by Raison De Santé funded by Shire France AG. Statistical analysis was provided by Methodomics. Publisher Copyright: © The Author(s) 2016.

PY - 2020/1/1

Y1 - 2020/1/1

N2 - Objective: The objective of this study is to retrospectively describe the pathway toward ADHD diagnosis and treatment, and identify potential areas for improvement. Method: Parent-reported questionnaires were collected by a national sample of ADHD specialists. Results: In total, 473 complete questionnaires were analyzed. Initial onset of ADHD symptoms was reported at a mean age of 4.45 years. Mean age at diagnosis was 8.07 years, and half of the families had seen at least three health care professionals previously. Psychiatrists were most commonly consulted. A “combined” (89% boys) and inattentive (49% boys) profile was identified. Diagnosis was made 1 year later for the latter group. Two thirds of patients received pharmacological treatment. The delay in diagnosis was identified as the main source of concern for caregivers. Conclusion: The 4-year delay in diagnosis may represent a loss of opportunity. Training health care professionals in the core symptoms of ADHD may help reduce disparities and improve patient trajectory.

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Health Care Trajectories for Children With ADHD in France: Results From the QUEST Survey

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Keywords

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