@article{92db021830ee401d9bb0c455049dc44b,
title = "Engagement practices that join scientific methods with community wisdom: designing a patient-centered, randomized control trial with a Pacific Islander community",
abstract = "This article illustrates how a collaborative research process can successfully engage an underserved minority community to address health disparities. Pacific Islanders, including the Marshallese, are one of the fastest growing US populations. They face significant health disparities, including extremely high rates of type 2 diabetes. This article describes the engagement process of designing patient-centered outcomes research with Marshallese stakeholders, highlighting the specific influences of their input on a randomized control trial to address diabetes. Over 18 months, an interdisciplinary research team used community-based participatory principles to conduct patient-engaged outcomes research that involved 31 stakeholders in all aspects of research design, from defining the research question to making decisions about budgets and staffing. This required academic researcher flexibility, but yielded a design linking scientific methodology with community wisdom.",
keywords = "Marshallese, Pacific Islanders, community-based participatory research, diabetes, health disparities, patient-centered outcomes research",
author = "McElfish, {Pearl Anna} and Goulden, {Peter A.} and Zoran Bursac and Jonell Hudson and Purvis, {Rachel S.} and {Kim Yeary}, {Karen H.} and Nia Aitaoto and Kohler, {Peter O.}",
note = "Funding Information: The research is made possible because of our CBPR partnership with the Marshallese Consulate General in Springdale, Arkansas, the Arkansas Coalition of Marshallese, and the Gaps in Services to the Marshallese Task Force. The CBPR partnership support is provided from the University of Arkansas for Medical Sciences Translational Research Institute (TRI) grant UL1TR000039, which is funded through the NIH National Center for Research Resources and National Center for Advancing Translational Sciences. The current research that this article describes was supported through a Patient-Centered Outcomes Research Institute (PCORI) Award. All statements in this report, including its findings and conclusions, are solely those of the authors and do not necessarily represent the views of the NIH nor of the PCORI. Publisher Copyright: {\textcopyright} 2016 John Wiley & Sons Ltd",
year = "2017",
month = apr,
day = "1",
doi = "10.1111/nin.12141",
language = "English",
volume = "24",
journal = "Nursing Inquiry",
issn = "1320-7881",
publisher = "Wiley-Blackwell Publishing Ltd",
number = "2",
}