Development of an interactive decision aid for female BRCA1/BRCA2 carriers

Elizabeth M. Kaufman, Beth N. Peshkin, William F. Lawrence, Rebecca Shelby, Claudine Isaacs, Karen Brown, Jessica Rispoli, Suzanne O'Neill, Karen Hurley, Tiffani DeMarco, Barbara Brogan, Sherry Grumet, Lina Jandorf, Kristine McKenna, Heiddis Valdimarsdottir, Marc D. Schwartz

Research output: Contribution to journalReview articlepeer-review

28 Scopus citations

Abstract

Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical decision-making issues. One such issue where there is uncertainty is breast cancer risk management among BRCA1/BRCA2 carriers. We present the development of a CD-ROM decision aid to facilitate risk management decision making in this population. Our decision aid was developed with the intention of providing it through a randomized clinical trial. The CD-ROM is a multimedia, interactive intervention which provides information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision aid. The goal of this CD-ROM, offered as an adjunctive intervention, is to reduce decisional conflict and psychological distress and improve comprehension of risk information, decisional satisfaction, medical adherence, and quality of life for this population of women at increased risk for breast cancer.

Original languageEnglish
Pages (from-to)109-129
Number of pages21
JournalJournal of Genetic Counseling
Volume12
Issue number2
DOIs
StatePublished - Apr 2003

Keywords

  • BRCA1/BRCA2
  • Breast cancer
  • Decision aid
  • Genetic counseling

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