TY - JOUR
T1 - Development of an interactive decision aid for female BRCA1/BRCA2 carriers
AU - Kaufman, Elizabeth M.
AU - Peshkin, Beth N.
AU - Lawrence, William F.
AU - Shelby, Rebecca
AU - Isaacs, Claudine
AU - Brown, Karen
AU - Rispoli, Jessica
AU - O'Neill, Suzanne
AU - Hurley, Karen
AU - DeMarco, Tiffani
AU - Brogan, Barbara
AU - Grumet, Sherry
AU - Jandorf, Lina
AU - McKenna, Kristine
AU - Valdimarsdottir, Heiddis
AU - Schwartz, Marc D.
N1 - Funding Information:
While the availability of decision aids to address a wide range of medical decisions is growing rapidly, our decision aid is the first to address breast cancer risk management among carriers of BRCA1 or BRCA2 mutations. We are currently evaluating the impact of this decision aid in a randomized trial funded by the National Cancer Institute. A team of behavioral psychologists, decision analysts, medical and surgical oncologists, genetic counselors, and computer programmers developed the content of the CD-ROM, and this content was shaped by quantitative and formative research (Burke et al., 1997; Green and Fost, 1997; Lerman et al., 1996). The CD-ROM, titled “Personal Aid to Health: Making Decisions that Work,” is a multimedia, interactive guide that includes written text, audio guides, on-screen graphics, animation, and short video testimonials. It includes information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision tool.
Funding Information:
This research was supported by Grant # RO1 CA82346 from the National Cancer Institute/National Institute of Health (Principal Investigator: Marc Schwartz, PhD).
PY - 2003/4
Y1 - 2003/4
N2 - Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical decision-making issues. One such issue where there is uncertainty is breast cancer risk management among BRCA1/BRCA2 carriers. We present the development of a CD-ROM decision aid to facilitate risk management decision making in this population. Our decision aid was developed with the intention of providing it through a randomized clinical trial. The CD-ROM is a multimedia, interactive intervention which provides information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision aid. The goal of this CD-ROM, offered as an adjunctive intervention, is to reduce decisional conflict and psychological distress and improve comprehension of risk information, decisional satisfaction, medical adherence, and quality of life for this population of women at increased risk for breast cancer.
AB - Shared decision making between patients and providers is becoming increasingly common, particularly when there is no clear preferred course of action. As a result, decision aids are being adopted with growing frequency and have been applied to many medical decision-making issues. One such issue where there is uncertainty is breast cancer risk management among BRCA1/BRCA2 carriers. We present the development of a CD-ROM decision aid to facilitate risk management decision making in this population. Our decision aid was developed with the intention of providing it through a randomized clinical trial. The CD-ROM is a multimedia, interactive intervention which provides information about breast cancer, risks associated with BRCA1 and BRCA2 mutations, risk management options for hereditary breast cancer, and a breast cancer risk management decision aid. The goal of this CD-ROM, offered as an adjunctive intervention, is to reduce decisional conflict and psychological distress and improve comprehension of risk information, decisional satisfaction, medical adherence, and quality of life for this population of women at increased risk for breast cancer.
KW - BRCA1/BRCA2
KW - Breast cancer
KW - Decision aid
KW - Genetic counseling
UR - http://www.scopus.com/inward/record.url?scp=2942594827&partnerID=8YFLogxK
U2 - 10.1023/A:1022698112236
DO - 10.1023/A:1022698112236
M3 - Review article
AN - SCOPUS:2942594827
SN - 1059-7700
VL - 12
SP - 109
EP - 129
JO - Journal of Genetic Counseling
JF - Journal of Genetic Counseling
IS - 2
ER -