Development and pilot test of the shriners pediatric instrument for neuromuscular scoliosis (SPNS): A quality of life questionnaire for children with spinal cord injuries

Louis Hunter, Fred Molitor, Ross S. Chafetz, Mary Jane Mulcahey, Lawrence C. Vogel, Randal R. Betz, Craig M. McDonald

Research output: Contribution to journalArticlepeer-review

4 Scopus citations

Abstract

Background/Objective: Children and adolescents who have sustained a spinal cord injury (SCI) are at risk of developing spine deformities and secondary complications that may affect their quality of life. The Shriners Pediatric Instrument for Neuromuscular Scoliosis (SPINS) is a condition-specific instrument that was developed to measure the health-related quality of life (HRQOL) of this patient population. A pilot study was conducted to revise the SPINS and assess comprehensibility. Methods: Fourteen children with SCI (ages 6-16 y) from a pediatric hospital were administered either a child version (ages 10-18 y) or a parent version (ages 5-9 y) of the SPINS. Problematic items were identified based on participants' feedback or low statistical variance. Results: Ten of 14 (71.6%) respondents understood at least 90% of the items, and 13 out of 14 (92.9%) comprehended more than 80% of relevant items on the SPINS. Conclusion: The SPINS has demonstrated comprehensibility. The next step is to measure the validity and reliability of the instrument. The SPINS shows promise as a means of assessing quality of life related to brace effectiveness in children with SCI and neuromuscular scoliosis who primarily use a wheelchair for mobility.

Original languageEnglish
Pages (from-to)S150-S157
JournalJournal of Spinal Cord Medicine
Volume30
Issue numberSUPPL. 1
DOIs
StatePublished - 2007
Externally publishedYes

Keywords

  • Adolescence
  • Bracing
  • Child
  • Orthoses
  • Quality of life
  • Questionnaire
  • Rehabilitation
  • Scoliosis
  • Shriners hospitals
  • Spinal cord injuries

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