Developing an adolescent and adult Fontan Management Programme

Adam M. Lubert, Tarek Alsaied, Andrew T. Trout, Jonathan R. Dillman, Joseph J. Palermo, Felicia Eichelbrenner, Kelly Kleier, Angela Lorts, Nadeem Anwar, Marc G. Schecter, Gregory M. Tiao, Clifford Chin, David S. Feldman, Meredith Jenkins, David L.S. Morales, Alexander R. Opotowsky, John C. Bucuvalas, Gruschen R. Veldtman, Stuart L. Goldstein

Research output: Contribution to journalArticlepeer-review

5 Scopus citations

Abstract

Patients with single-ventricle CHD undergo a series of palliative surgeries that culminate in the Fontan procedure. While the Fontan procedure allows most patients to survive to adulthood, the Fontan circulation can eventually lead to multiple cardiac complications and multi-organ dysfunction. Care for adolescents and adults with a Fontan circulation has begun to transition from a primarily cardiac-focused model to care models, which are designed to monitor multiple organ systems, and using clues from this screening, identify patients who are at risk for adverse outcomes. The complexity of care required for these patients led our centre to develop a multidisciplinary Fontan Management Programme with the primary goals of earlier detection and treatment of complications through the development of a cohesive network of diverse medical subspecialists with Fontan expertise.

Original languageEnglish
Pages (from-to)230-235
Number of pages6
JournalCardiology in the Young
Volume32
Issue number2
DOIs
StatePublished - 10 Feb 2022

Keywords

  • Fontan
  • adult congenital heart disease
  • multidisciplinary clinic

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