TY - JOUR
T1 - Cuban American Perspectives on Sexual Dysfunction Following Pelvic Radiotherapy
T2 - A Qualitative Study
AU - Duenas-Lopez, Mariana
AU - Morgan, Orly
AU - Marshall, Deborah C.
AU - Carney, Lauren
AU - Caban-Martinez, Alberto
AU - Huang, Marilyn
AU - Portelance, Lorraine
AU - Schnur, Julie
N1 - Publisher Copyright:
© 2023, The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
PY - 2023/12
Y1 - 2023/12
N2 - Participation in sexual medicine research may depend on a patient’s willingness to speak openly about sex, sexual function, or other sensitive topics. These topics may be difficult or uncomfortable to talk about, and this discomfort may be further amplified when a patient comes from a cultural background that stigmatizes open conversation about sex and sexuality. We used qualitative analysis to better understand the intersection between cultural identity, the experience of sexual dysfunction as a side-effect of pelvic radiotherapy, and willingness to communicate about sexual dysfunction with healthcare providers, in Cuban American women in Miami, Florida. Doing so, we found four unique themes among Cuban American participants regarding the intersection of national identity, Hispanic identity, Catholic religion, and their experience of radiotherapy-related sexual dysfunction: Marianismo, Machismo, Familismo, and Espiritismo. These themes, a reflection of the cohort’s shared identity, were found to have an effect on participant views of sexual health, romantic relationships, coping strategies, and relative comfort discussing problems with intercourse. These cultural values served as barriers to openly discussing sexual dysfunction with not just medical providers and research teams but also their partners, families, and friends. In order to encourage Cuban American participation in sexual medicine studies, future research should evaluate strategies to overcome these barriers.
AB - Participation in sexual medicine research may depend on a patient’s willingness to speak openly about sex, sexual function, or other sensitive topics. These topics may be difficult or uncomfortable to talk about, and this discomfort may be further amplified when a patient comes from a cultural background that stigmatizes open conversation about sex and sexuality. We used qualitative analysis to better understand the intersection between cultural identity, the experience of sexual dysfunction as a side-effect of pelvic radiotherapy, and willingness to communicate about sexual dysfunction with healthcare providers, in Cuban American women in Miami, Florida. Doing so, we found four unique themes among Cuban American participants regarding the intersection of national identity, Hispanic identity, Catholic religion, and their experience of radiotherapy-related sexual dysfunction: Marianismo, Machismo, Familismo, and Espiritismo. These themes, a reflection of the cohort’s shared identity, were found to have an effect on participant views of sexual health, romantic relationships, coping strategies, and relative comfort discussing problems with intercourse. These cultural values served as barriers to openly discussing sexual dysfunction with not just medical providers and research teams but also their partners, families, and friends. In order to encourage Cuban American participation in sexual medicine studies, future research should evaluate strategies to overcome these barriers.
KW - Cancer
KW - Ethnicity
KW - Hispanic or Latino
KW - Qualitative research
KW - Radiotherapy
KW - Sexual dysfunction
KW - United States
UR - https://www.scopus.com/pages/publications/85174393090
U2 - 10.1007/s11195-023-09812-z
DO - 10.1007/s11195-023-09812-z
M3 - Article
AN - SCOPUS:85174393090
SN - 0146-1044
VL - 41
SP - 757
EP - 768
JO - Sexuality and Disability
JF - Sexuality and Disability
IS - 4
ER -