TY - JOUR
T1 - Consensus Definition of Misophonia
T2 - A Delphi Study
AU - Swedo, Susan E.
AU - Baguley, David M.
AU - Denys, Damiaan
AU - Dixon, Laura J.
AU - Erfanian, Mercede
AU - Fioretti, Alessandra
AU - Jastreboff, Pawel J.
AU - Kumar, Sukhbinder
AU - Rosenthal, M. Zachary
AU - Rouw, Romke
AU - Schiller, Daniela
AU - Simner, Julia
AU - Storch, Eric A.
AU - Taylor, Steven
AU - Werff, Kathy R.Vander
AU - Altimus, Cara M.
AU - Raver, Sylvina M.
N1 - Funding Information:
The authors thank The REAM Foundation for their strong commitment to the misophonia research community through their development of, and ongoing support for, the Misophonia Research Fund (MRF). The authors also wish to thank the MRF Scientific Advisory Board for prioritizing the development of a foundational understanding of misophonia as one of the earliest MRF strategic initiatives, and for their ongoing support of the consensus definition project.
Funding Information:
The authors declare that this study received funding from the REAM Foundation (grant number 7894 to the Milken Institute Center for Strategic Philanthropy). The funder was not involved in the study design, collection, analysis, interpretation of data, the writing of this article, or the decision to submit it for publication.
Publisher Copyright:
Copyright © 2022 Swedo, Baguley, Denys, Dixon, Erfanian, Fioretti, Jastreboff, Kumar, Rosenthal, Rouw, Schiller, Simner, Storch, Taylor, Werff, Altimus and Raver.
PY - 2022/3/17
Y1 - 2022/3/17
N2 - Misophonia is a disorder of decreased tolerance to specific sounds or their associated stimuli that has been characterized using different language and methodologies. The absence of a common understanding or foundational definition of misophonia hinders progress in research to understand the disorder and develop effective treatments for individuals suffering from misophonia. From June 2020 through January 2021, the authors conducted a study to determine whether a committee of experts with diverse expertise related to misophonia could develop a consensus definition of misophonia. An expert committee used a modified Delphi method to evaluate candidate definitional statements that were identified through a systematic review of the published literature. Over four rounds of iterative voting, revision, and exclusion, the committee made decisions to include, exclude, or revise these statements in the definition based on the currently available scientific and clinical evidence. A definitional statement was included in the final definition only after reaching consensus at 80% or more of the committee agreeing with its premise and phrasing. The results of this rigorous consensus-building process were compiled into a final definition of misophonia that is presented here. This definition will serve as an important step to bring cohesion to the growing field of researchers and clinicians who seek to better understand and support individuals experiencing misophonia.
AB - Misophonia is a disorder of decreased tolerance to specific sounds or their associated stimuli that has been characterized using different language and methodologies. The absence of a common understanding or foundational definition of misophonia hinders progress in research to understand the disorder and develop effective treatments for individuals suffering from misophonia. From June 2020 through January 2021, the authors conducted a study to determine whether a committee of experts with diverse expertise related to misophonia could develop a consensus definition of misophonia. An expert committee used a modified Delphi method to evaluate candidate definitional statements that were identified through a systematic review of the published literature. Over four rounds of iterative voting, revision, and exclusion, the committee made decisions to include, exclude, or revise these statements in the definition based on the currently available scientific and clinical evidence. A definitional statement was included in the final definition only after reaching consensus at 80% or more of the committee agreeing with its premise and phrasing. The results of this rigorous consensus-building process were compiled into a final definition of misophonia that is presented here. This definition will serve as an important step to bring cohesion to the growing field of researchers and clinicians who seek to better understand and support individuals experiencing misophonia.
KW - consensus building
KW - emotional dysregulation
KW - medical definitions
KW - misophonia
KW - misophonia triggers
KW - sensory sensitivities
KW - sound sensitivity (auditory sensitivity)
UR - http://www.scopus.com/inward/record.url?scp=85127940675&partnerID=8YFLogxK
U2 - 10.3389/fnins.2022.841816
DO - 10.3389/fnins.2022.841816
M3 - Article
AN - SCOPUS:85127940675
SN - 1662-4548
VL - 16
JO - Frontiers in Neuroscience
JF - Frontiers in Neuroscience
M1 - 841816
ER -