Clinical report - Maternal-fetal intervention and fetal care centers

Steven J. Ralston, Steven R. Leuthner, Douglas S. Diekema, Mary E. Fallat, Armand H. Matheny Antommaria, Ian R. Holzman, Aviva L. Katz, Lainie Friedman Ross, Sally A. Webb, Kathryn L. Weise, Jessica W. Berg, Philip L. Baese, Marcia Levetown, Anne D. Lyerly, Ellen Tsai, Alison Baker, Judith Bernstein, Cynthia A. Brincat, Marianne L. Burda, James F. ChildressRuth M. Farrell, Helen L. Frederickson, Frederick G. Kroncke, Mary Faith Marshall, Howard L. Minkoff, Lois M. Ramondetta, Monique A. Spillman, Joelene J.S. Werden, Susan C. Del Pesco, Kavita Shah, Robert Brzyski, Frank A. Chervenak, Hal C. Lawrence, Mary F. Mitchell

Research output: Contribution to journalArticlepeer-review

48 Scopus citations

Abstract

The past 2 decades have yielded profound advances in the fields of prenatal diagnosis and fetal intervention. Although fetal interventions are driven by a beneficence-based motivation to improve fetal and neonatal outcomes, advancement in fetal therapies raises ethical issues surrounding maternal autonomy and decision-making, concepts of innovation versus research, and organizational aspects within institutions in the development of fetal care centers. To safeguard the interests of both the pregnant woman and the fetus, the American College of Obstetricians and Gynecologists and the American Academy of Pediatrics make recommendations regarding informed consent, the role of research subject advocates and other independent advocates, the availability of support services, the multidisciplinary nature of fetal intervention teams, the oversight of centers, and the need to accumulate maternal and fetal outcome data.

Original languageEnglish
Pages (from-to)e473-e478
JournalPediatrics
Volume128
Issue number2
DOIs
StatePublished - Aug 2011

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