Clinical and genetic registries in psoriatic disease

Dafna D. Gladman; Proton Rahman; Gerald G. Krueger; Philip J. Mease; Abrar A. Qureshi; Jan P. Dutz; Ulla Lindqvist; Sueli Carneiro; Philip S. Helliwell; Ilona Ujfalussy; Alice B. Gottlieb; Frank Behrens; Mona Ståhle

Clinical and genetic registries in psoriatic disease

Dafna D. Gladman, Proton Rahman, Gerald G. Krueger, Philip J. Mease, Abrar A. Qureshi, Jan P. Dutz, Ulla Lindqvist, Sueli Carneiro, Philip S. Helliwell, Ilona Ujfalussy, Alice B. Gottlieb, Frank Behrens, Mona Ståhle

Research output: Contribution to journal › Article › peer-review

15 Scopus citations

Abstract

Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.

Original language	English
Pages (from-to)	1458-1463
Number of pages	6
Journal	Journal of Rheumatology
Volume	35
Issue number	7
State	Published - Jul 2008
Externally published	Yes

Keywords

Clinical registries
Genetic studies
Psoriasis
Psoriatic arthritis

Cite this

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title = "Clinical and genetic registries in psoriatic disease",

abstract = "Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.",

keywords = "Clinical registries, Genetic studies, Psoriasis, Psoriatic arthritis",

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AU - Gladman, Dafna D.

AU - Rahman, Proton

AU - Krueger, Gerald G.

AU - Mease, Philip J.

AU - Qureshi, Abrar A.

AU - Dutz, Jan P.

AU - Lindqvist, Ulla

AU - Carneiro, Sueli

AU - Helliwell, Philip S.

AU - Ujfalussy, Ilona

AU - Gottlieb, Alice B.

AU - Behrens, Frank

AU - Ståhle, Mona

PY - 2008/7

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AB - Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression. At the 2007 Annual Meeting of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA), members of the clinical registries and genetics committees described several ongoing registries, including their construction, protocols, and some results from their analyses. In breakout groups, members discussed data issues, including identification of core datasets, ownership, and how to share data; and ethical issues and possible sources of funding for registries. Proceedings of these meetings are summarized.

KW - Clinical registries

KW - Genetic studies

KW - Psoriasis

KW - Psoriatic arthritis

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Clinical and genetic registries in psoriatic disease

Abstract

Keywords

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