Cancer care in east and central harlem: Community partnership needs assessment

Tiffany A. Edwards, Lina Jandorf, Hurdley Freemantle, Jamilia Sly, Jennie Ellison, Carrie R. Wong, Cristina Villagra, Joseph Hong, Sara Kaleya, Madrid Poultney, Carmen Villegas, Barbara Brenner, Nina Bickell

Research output: Contribution to journalArticlepeer-review

3 Scopus citations

Abstract

In the largely African American and Hispanic communities of East and Central Harlem in New York City (NYC), health inequities are glaring. Mortality from cancer is 20-30% higher than in Manhattan and 30-40% higher than rates in the general population in NYC. Despite advances in risk assessment, early detection, treatment, and survivorship, individuals in Harlem and similar urban communities are not benefiting equally. Guided by community-based participatory research, this study serves as an important step in understanding cancer care needs and the range of factors that impact the disparate rates of cancer in East and Central Harlem. Forty individual interviews were conducted with community leaders and residents. Major themes included: need for appropriate supportive services; health care access and financial challenges; beliefs related to stigma, trust, and accountability; and the impact of the physical environment on health. Education was seen as a critical area of need and intervention.

Original languageEnglish
Pages (from-to)171-178
Number of pages8
JournalJournal of Cancer Education
Volume28
Issue number1
DOIs
StatePublished - Mar 2013

Keywords

  • Cancer
  • Community needs assessment
  • Ethnic minority
  • Health disparity
  • Oncology

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