TY - JOUR
T1 - Barriers to Care in Chinese Immigrants with Hepatocellular Carcinoma
T2 - A Focus Group Study in New York City
AU - Sarpel, Umut
AU - Huang, Xiaoxiao
AU - Austin, Charlotte
AU - Gany, Francesca
N1 - Funding Information:
Acknowledgements This study was supported by grant 1R03CA164546-01A1 from the National Cancer Institute (PI Sarpel).
Publisher Copyright:
© 2018, Springer Science+Business Media, LLC, part of Springer Nature.
PY - 2018/12/1
Y1 - 2018/12/1
N2 - The incidence of hepatocellular carcinoma (HCC) is rising sharply in the United States and deaths from HCC have increased at the highest rate of all cancers. Though Asians have the highest incidence of HCC of all ethnicities in the US, racial/ethnic minorities, including Asians, have worse survival from HCC. We sought to identify barriers to care in treatment of HCC among affected individuals in the NYC Chinese immigrant community. We held focus groups with Chinese immigrant patients in NYC with HCC. 29 individuals participated in the focus groups. We analyzed focus group data using grounded theory methodology. Barriers to care identified included insurance, money, time, language, residency status, and stigma. The impact of provider bias and culture were also discussed. Knowledge gathering with minority patients with HCC is essential for us to fully comprehend the barriers to healthcare experienced by this community. Future policy and intervention efforts must be founded in this reality.
AB - The incidence of hepatocellular carcinoma (HCC) is rising sharply in the United States and deaths from HCC have increased at the highest rate of all cancers. Though Asians have the highest incidence of HCC of all ethnicities in the US, racial/ethnic minorities, including Asians, have worse survival from HCC. We sought to identify barriers to care in treatment of HCC among affected individuals in the NYC Chinese immigrant community. We held focus groups with Chinese immigrant patients in NYC with HCC. 29 individuals participated in the focus groups. We analyzed focus group data using grounded theory methodology. Barriers to care identified included insurance, money, time, language, residency status, and stigma. The impact of provider bias and culture were also discussed. Knowledge gathering with minority patients with HCC is essential for us to fully comprehend the barriers to healthcare experienced by this community. Future policy and intervention efforts must be founded in this reality.
KW - Barriers to care
KW - Focus groups
KW - Health disparities
KW - Hepatocellular carcinoma
KW - Immigrants
UR - http://www.scopus.com/inward/record.url?scp=85048529362&partnerID=8YFLogxK
U2 - 10.1007/s10900-018-0536-7
DO - 10.1007/s10900-018-0536-7
M3 - Article
C2 - 29948526
AN - SCOPUS:85048529362
SN - 0094-5145
VL - 43
SP - 1161
EP - 1171
JO - Journal of Community Health
JF - Journal of Community Health
IS - 6
ER -