An official american thoracic society workshop report: Assessment and palliative management of dyspnea crisis

Richard A. Mularski, Lynn F. Reinke, Virginia Carrieri-Kohlman, Mark D. Fischer, Margaret L. Campbell, Graeme Rocker, Ann Schneidman, Susan S. Jacobs, Robert Arnold, Joshua O. Benditt, Sara Booth, Ira Byock, Garrett K. Chan, J. Randall Curtis, Dor Anne Donesky, John Hansen-Flaschen, John Heffner, Russell Klein, Trina M. Limberg, Harold L. ManningR. Sean Morrison, Andrew L. Ries, Gregory A. Schmidt, Paul A. Selecky, Robert D. Truog, Angela C.C. Wang, Douglas B. White

Research output: Contribution to journalArticlepeer-review

87 Scopus citations

Abstract

In 2009, the American Thoracic Society (ATS) funded an assembly project, Palliative Management of Dyspnea Crisis, to focus on identification, management, and optimal resource utilization for effective palliation of acute episodes of dyspnea. We conducted a comprehensive search of the medical literature and evaluated available evidence from systematic evidence-based reviews (SEBRs) using a modified AMSTAR approach and then summarized the palliative management knowledge base for participants to use in discourse at a 2009 ATS workshop.We used an informal consensus process to develop a working definition of this novel entity and established an Ad Hoc Committee on Palliative Management of DyspneaCrisis to further develop anofficialATSdocument onthe topic. The Ad Hoc Committee members defined dyspnea crisis as "sustained and severe resting breathing discomfort that occurs in patients with advanced, often life-limiting illness and overwhelms the patient and caregivers' ability to achieve symptom relief." Dyspnea crisis can occur suddenly and is characteristically without a reversible etiology. The workshop participants focused on dyspnea crisis management for patients in whom the goals of care are focused on palliation and for whom endotracheal intubation and mechanical ventilation are not consistent with articulated preferences. However, approaches to dyspnea crisis may also be appropriate for patients electing life-sustaining treatment. The Ad Hoc Committee developed a Workshop Report concerning assessment of dyspnea crisis; ethical and professional considerations; efficient utilization, communication, and care coordination; clinical management of dyspnea crisis; development of patient education and provider aid products; and enhancing implementation with audit and quality improvement.

Original languageEnglish
Pages (from-to)S98-S106
JournalAnnals of the American Thoracic Society
Volume10
Issue number5
DOIs
StatePublished - Oct 2013

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