An empirically based practice perspective on the transition to adulthood for solid organ transplant recipients

Rachel A. Annunziato, Dawn Freiberger, Kathy Martin, Jacqueline Helcer, Christopher Fitzgerald, Debra S. Lefkowitz

Research output: Contribution to journalReview articlepeer-review

16 Scopus citations

Abstract

Preparing patients for transitioning to self-managed care and subsequently transferring to the adult healthcare system has become a critical process for clinicians working with pediatric transplant recipients. This paper reviews several barriers to a successful transition. These include patient barriers, caregiver barriers, and considerations within pediatric and adult centers. To date, few approaches for improving the transition process have been empirically tested. This review details studies that have examined possible models including usage of a transition coordinator and transition clinics. Recommendations are offered to promote an optimal transition including the importance and content of preparation, assessing and addressing transition readiness, insuring the involvement of all stakeholders, and finally, at minimum providing services during the transfer period. Future directions are offered aiming to advance this important area of investigation.

Original languageEnglish
Pages (from-to)794-802
Number of pages9
JournalPediatric Transplantation
Volume18
Issue number8
DOIs
StatePublished - 2014
Externally publishedYes

Keywords

  • Pediatric transplantation
  • Transfer
  • Transition

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