Activity and participation after spinal cord injury: State-of-the-art report

Philip M. Ullrich, Ann M. Spungen, Darryn Atkinson, Charles H. Bombardier, Yuying Chen, Norma A. Erosa, Shirley Groer, Lisa Ottomanelli, David S. Tulsky

Research output: Contribution to journalReview articlepeer-review

26 Scopus citations

Abstract

The importance of activities and community participation for persons with spinal cord injury (SCI) has been recognized for decades and yet theoretical and empirical advances have been limited. This report summarizes the recommendations for researchers on the topic of measuring activity and participation among persons with SCI formulated by the Spinal Cord Injury workgroup at the State-of-the-Art Conference on Outcome Measures in Rehabilitation held in January 2010. Activity and participation were defined as independent constructs ideally measured in reference to personal values and environmental influences. Measures of activity, participation, and factors influencing activity and participation are reviewed and critiqued. Gaps in available measures are described, measures in development are discussed, and suggestions for future research are made.

Original languageEnglish
Pages (from-to)155-174
Number of pages20
JournalJournal of Rehabilitation Research and Development
Volume49
Issue number1
DOIs
StatePublished - 2012
Externally publishedYes

Keywords

  • Activity
  • Disability
  • Employment
  • Functioning
  • Measurement
  • Outcomes
  • Participation
  • Quality of life
  • Rehabili-tation
  • Spinal cord injury

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