A roadmap for early psychosocial support in palliative care for people impacted by ALS - Reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care

Christina L. Rush, Ethan G. Lester, James D. Berry, Kate T. Brizzi, Elizabeth C. Lindenberger, Jared Randall Curtis, Ana Maria Vranceanu

Research output: Contribution to journalReview articlepeer-review

3 Scopus citations

Abstract

This commentary describes the current state of psychosocial care for people with amyotrophic lateral sclerosis and their caregivers. We provide recommendations for developing a roadmap for future research based on existing literature and our group's clinical and research experience to inform next steps to expand evidence-based psychosocial care for people with amyotrophic lateral sclerosis and their caregivers, with potential implications for a range of advanced illnesses. Lay summary This article talks about psychosocial care for people with amyotrophic lateral sclerosis and the loved ones who take care of them (caregivers). We talk about gaps in current psychosocial care and offer ideas about research to help develop care options for people with amyotrophic lateral sclerosis and their caregivers. It is possible that this work could also guide the development of psychosocial care for people with other advanced illnesses and their caregivers.

Original languageEnglish
Pages (from-to)722-726
Number of pages5
JournalTranslational Behavioral Medicine
Volume13
Issue number9
DOIs
StatePublished - 1 Sep 2023
Externally publishedYes

Keywords

  • Amyotrophic lateral sclerosis
  • Dyadic
  • Early palliative care
  • Lou Gehrig's disease
  • Psychosocial intervention
  • Resilience

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