A learning health network for pediatric liver transplantation: Inaugural meeting report from the Starzl Network for Excellence in Pediatric Transplantation

James E. Squires, Beth Logan, Angela Lorts, Henrisa Haskell, Kristen Sisaithong, Tony Pillari, Jonathan Szolna, Darcy Dodd, Regino P. Gonzalez-Peralta, Evelyn Hsu, Beau Kelly, Beverly Kosmach-Park, Steven Lobritto, Vicky L. Ng, Emily Perito, Sara Rasmussen, Rene Romero, Eyal Shemesh, Hannah Karolak, George V. Mazariegos

Research output: Contribution to journalArticlepeer-review

12 Scopus citations

Abstract

Learning Health Networks (LHN) improve the well-being of populations by aligning clinical care specialists, technology experts, patients and patient advocates, and other thought leaders for continuous improvement and seamless care delivery. A novel LHN focused on pediatric transplantation, the Starzl Network for Excellence in Pediatric Transplantation (SNEPT), convened its inaugural meeting in September 2018. Clinical care team representatives, patients, and patient families/advocates partnered to take part in educational sessions, pain point exercises, and project identification workshops. Participants discussed the global impact of transplant from both a population and individual perspective, identifying challenges and opportunities where the Starzl Network could work to improve outcomes at scale across a variety of transplant-related conditions.

Original languageEnglish
Article numbere13528
JournalPediatric Transplantation
Volume23
Issue number6
DOIs
StatePublished - 2019

Keywords

  • children
  • learning health system
  • liver transplantation
  • quality improvement

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