A comparison of the availability and content of genetic counseling as percieved by hemophilic men and carriers in the U.S.A., Canada, Scotland, and Greece

A survey study was carried out with 211 hemophilic men and 205 carriers of hemophilia at four hemophilia centers in New York; London, Ontario; the West of Scotland; and Athens, Greece. The participants responded to a questionnaire exploring socio-demographic and medical information, attitudes toward hemophilia, and experience of and attitudes toward genetic couseling. The study shows differences between attitudes of hemophilic men and carriers, differences in perceived problems among patients and carriers in the four centers, and differences in opinions between consumers ansd professionals. Comprehensive services for hemophilic families available in the New York center facilitate both patient education and satisfaction.